To talk of many things.
Well, of one thing to be specific. We gave the go ahead to schedule the surgery, hopefully on Friday. She gets really into her feed at first and then she just tires out. Her percentage has plateaued I think and we just don't see it getting better too quickly. I think the g-tube will be handy and it is reversible. Who knows, by the time she gets her pull-through done, we can have it reversed then.
At least we know we tried our hardest and exhausted every option. She will be enrolled in a program at this hospital where they work with her feeding/physical/occupational therapies all the way to 2 years old. This should hopefully help her transition to a point of not needing the tube in the long run.
I've met another young girl with a feeding tube. She was able to be weaned off the tube as a toddler. I'm sure she will do well!
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