single step

single step

Monday, September 28, 2015

I Pity the Fool

Last night, I got to give her the first feed of 40mL. She was so frantic during the first part of the feed though that when she had 15 left to go, she threw up quite a bit. Then she calmed down enough to handle the 15. We were then told this morning that she is up to 45 but she keeps throwing some of it up. They're hoping that speech therapy will help figure out what to do for this problem. 

They also want physical therapy to come in and give us some stretches and things we can do to help her neck out. She's been sleeping the same direction in the crib for so long, she can easily turn her head one way, but has trouble with the other direction. Her surgeon came by this morning and was happy with the wet to dry bandaging on her incision which is helping it close up nicely. He will be back later today to remove her central line. 

I also noticed that she had more beads which helped me finish up her fourth string. Once they add more beads to her bag, I'm going to need a fifth string to put them on. Justin jokes that he'll need a trunk to hold them all. I joke that when she wears all of these:


She's going to look like:

No wonder he's cringing while he winks. I would too with all that weight around my neck. 




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