single step

single step

Tuesday, September 29, 2015

Today we learned that they just can't get an IV to stay on her. This is partially due to her kicking, pulling, what have you at them. So since they don't have a way to give her the TPN, they put an NG tube in her stomach through her nose. She will still have regular feeds, they will just use the tube to supplement what she doesn't take on her own. 

This will help her be able to pace herself while she learns, but still get the nutrients and fluids she needs. Tonight they will do a slow drip feed to help her stomach figure out its proper way to function. 

I also learned today that my Grandma might be passing soon. At any rate, her condition has worsened. It's been a long time coming, but hearing this just makes it more real. I'm trying to grapple with knowing I need to be here with my baby, and she would say as much, but feeling bad that I wouldn't be able to go to her funeral when she passes. 

Knowing that she will be with Grandpa again makes me feel happy for her, and then she could come in spirit to meet Elizabeth. It still is sad for me too though. I would appreciate prayers for my emotional well being. Thank you, all. The faith, support, and prayers have been felt and have brought us this far. 

3 comments:

  1. Will this mean we can't hold Lizzy?? I'm so sorry to hear about your Grandma. I know how specials Grandmothers are!!! :(

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    1. If anything it will be easier to hold Lizzy. She has a lot less on her now that she ever has.

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    2. That is soooooo Awesome!!!!

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